Showing posts with label eczema. Show all posts
Showing posts with label eczema. Show all posts

Wednesday, December 16, 2015

Living With Chronic Eczema

You brush your shirt off to get the tell-tale flakes of skin off only to look down two minutes later to see a million more. This is living with eczema. Part of it anyway. Every day you struggle with the embarrassment of going out in public with your skin peeling so much you look like a zombie straight out of the Walking Dead.
It's not pretty, it's not fun. Most days I wake up scratching myself in the middle of the night, worried what it's going to look like the next day. I constantly worry that the fast rate at which I shed my skin is eventually going to leave me skinless, which is absurd, but it's what runs through my head.
I've tried every lotion, cream, and medication you can name. Natural, not: I've tried it. And yes, I even tried tanning. Nothing works. The first time I was racked with this horrible skin condition, the flare up lasted a full two years.  In that time, I saw EIGHT doctors, was allergy tested multiple times, and was tested for lupus (which included blood tests and MRIs). I was even put on dangerous medications usually used for organ transplants to suppress my immune system. NOTHING WORKED. 
Eventually, I switched jobs and the symptoms started to subside on their own. I figured it must've been something I was working with, which could've been anything because I worked at Kroger. While I was pregnant, my skin looked the best it has ever looked. And, not a month after my son was born, my eczema came back worse than before.
Now I am struggling with whether or not to even bother with another pointless doctor who will give me prednisone (oral steroids) to temporarily solve the problem and a steroid cream that won't work. In the two years I suffered before I was on prednisone multiple times and gained fifty pounds from being on that medication. Never was able to drop the weight either, which is seriously unhealthy for a 5'2" person.
So I go on. I lather lotion all over and try to keep myself from scratching my scalp, my face, my chest, my stomach, my arms, my legs. I'm crossing my fingers it goes away sooner than two years this time. It's not easy to live with, and it certainly doesn't help my battle with depression and anxiety.
There is currently little research on the causes of eczema and an even smaller amount dedicated to finding a cure. I encourage you to check out the National Eczema Association. Eczema is not a fatal disease but it is debilitating and we need a cure. Eight doctors couldn't help me. Who can?

Sunday, November 18, 2012

Weekend Stress

I haven't been able to post in a couple days what with work and seeing the family and everything. That's nothing to complain about though. I have a job and a wonderful family to spend time with. Now it's time to settle in for the night and begin the homework that's due tomorrow. I am a terrible procrastinator, but I'm sure any of you who have gone or are going to school understand that.

The past couple of days have been pretty hard for me. My unsolved skin problems are just getting worse. After two years, I can honestly say I just want to peel all my skin off and get some new skin. Disgusting, I know, but really no one seems to be able to find a solution for me. Next week I will be seeing my fifth dermatologist and the eighth doctor for this same problem. No one seems to know what's wrong or how to fix it. Incredibly frustrating. It's hard to keep positive and continue on when things seem so dismal. I just have to remind myself of all the things I do have and try not to dwell on the the bad stuff.

Have any of you ever gone through so many doctors? Do you know what it is like to not know what is wrong with you? I'm sure there are many people who know what I'm going through.

So today, if you have good health, be thankful. And even if you don't, try your hardest to simply be thankful for all the things you do have: family, friends, a job, a home....

Stay strong. Keep your head up. Remember life is hard, but so worth it.